Joe’s story was developed to help explain Fabry disease and its treatment from the perspective of a ten year old. This story allows children to join Joe on his journey through diagnosis and treatment of his disease.
The ThinkGenetic Foundation is proud to refer “Joe Learns About Fabry Disease” to families with children diagnosed with Fabry disease in support of our mission to educate and empower the genetic condition community.
Written by Dawn Laney, MS, CGC, CCRC, Founder of ThinkGenetic, Inc. as well as Assistant Professor, LSDC Program Leader, and Director of the Emory Genetic Clinical Trial Center at Emory University.
Click the link below to order via Amazon.com. Available in paperback and Kindle versions.