ThinkGenetic Foundation

Educate and empower people and families living with genetic diseases

(978) 295-9730 | info@thinkgenetic.org

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New Shop Items Added to ThinkGenetic Foundation Store

October 1, 2017 Ruth O'Keefe

Our famous Geney has been making the rounds and by popular demand new items have been added to our fundraising shop.

What kind of items? Take a look at some of our recent additions. Remember, a purchase in the shop not only gets you a delivery to your door, but a chartible gift to ours. Every purchase goes to support our mission and programs.

So, without further ado, just a few of our new items in the ThinkGenetic Foundation shop…

Geney iPhone 7/7 Plus Case
Geney Towel
Geney Tote Bag

Geney Hooded Sweatshirt
Geney Pillow

Filed Under: News Tagged With: fundraising, Shop

Our Ongoing Commitment to Patient Programs

September 12, 2017 Dawn Laney, MS, CGC, CCRC

The ThinkGenetic Foundation’s relevance throughout the genetics community is growing and becoming more firmly established among patients, family members, and advocacy groups as we continue to provide the necessary educational tools to understand their conditions and appropriately manage their disease.

The ThinkGenetic Foundation team works closely with patients, family members, advocacy groups, and healthcare providers to develop high-quality; patient-geared programs and materials that help educate and encourage discussion among patients and their healthcare team while empowering patients to become better managers of their own health outcomes.  These programs are generously funded through individual donations and grants by industry, providers and pharmaceutical partners who share our commitment to quality patient care and consumer choice.

Each of our educational programs is subjected to critical review by our board of directors for accuracy and by our patient advocacy and support partners for relevance and ease of understanding and practical use. 

Every program is designed with the purposes of:

  • Understanding a full range of management and clinical treatment options for selecting appropriate therapies;
  • Identifying barriers to genetic testing and receiving quality monitoring/treatment; and
  • Reinforcing practical next steps to motivate change and achieve an overall improvement in health outcomes

The ThinkGenetic foundation engages in many multi-supported programs and activities that educate, advocate for, and empower patients to understand their options, access genetic testing, understand the impact of the genetic condition on them/their family members, take control of their illness, and make informed choices on the best course of monitoring and treatment for them.  The ThinkGenetic foundation firmly believes that an informed patient is a stronger patient.

The Association takes pride in its current and future programs, as all activities must:

  • Further its mission;
  • Meet the guidelines of ThinkGenetic’s initiatives (see chart below);
  • And most importantly, begin and end with patients and improved outcomes.

ThinkGenetic Foundation Patient Programs

 

Filed Under: Blog, Education

Support the ThinkGenetic Foundation by Shopping at AmazonSmile

September 1, 2017 Ruth O'Keefe

Big user of Amazon? Who isn’t.

The ThinkGenetic Foundation is now enrolled in Amazon Smile! By selecting us as your charity a small percentage of every purchase you make will be donated to the ThinkGenetic Foundation!

It’s a quick and easy way to support our goal of helping those with genetic conditions.

Go to https://smile.amazon.com/ch/81-4241717 to select us and use smile.amazon.com everytime you shop. Then, Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to our charitable organization. It’s the same Amazon you know. Same products, same prices, same service.

Thank you for your consideration.

Filed Under: News Tagged With: Amazon Smile, donation

ThinkGenetic Foundation at NSGC 36th Annual Conference

August 1, 2017 Ruth O'Keefe

ThinkGenetic Foundation board member, Dawn Laney, will be attending the upcoming NSGC 36th Annual Conference.

The NSGC Annual Conference showcases advancements across the breadth of the genetic counseling profession to provide education and build community. Attendees will gain knowledge of clinical and scientific best practices and insights into emerging research. The conference provides a unique opportunity to engage and network with colleagues and pursue professional development.

  • When: September 13-16, 2017
  • Location: Columbus, OH
  • Venue: Greater Columbus Convention Center
  • Preliminary Program

Filed Under: Events Tagged With: Dawn Laney, NSGC

ThinkGenetic Foundation at Global Genes RARE Patient Advocacy Summit

July 30, 2017 Ruth O'Keefe

Both board members, Dave Jacob and Dawn Laney, will be in attendance at the 2017 RARE Patient Advocacy Summit hosted by Global Genes.

The 2017 RARE Patient Advocacy Summit brings rare advocates from across the globe together to Connect, Collaborate, and Activate. This educational conference creates a space for members of the rare disease community to share best practices, create important introductions, and help catalyze powerful collaborations. Attendees share their experience, knowledge, and expertise as conference presenters and or participants.

When: September 14-15, 2017
Location: Irvine, California
Venue: Hotel Irvine

Learn more at https://globalgenes.org/2017summit/

Filed Under: Events Tagged With: Dave Jacob, Dawn Laney, Global Genes

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