When will I die from Fanconi anemia?

No one can predict how long any person will with Fanconi anemia (FA) will survive. Each person with FA is unique and might present with different symptoms or the condition. Accoring to cases reported by the Internation Fanconi Anemia Registry, the average life expectancy for people with FA is about 20 to 30 years. Some patients live into their 30’s, 40’s, and 50’s. It is important to note that anyone can have a different life expectancy than any “average”. New research in FA has improved treatments, which can extend one’s life expectancy.

Other Questions About Fanconi anemia

• Why is Fanconi anemia caused by the changes in the FANC genes?
• Who else in my family should I test for Fanconi anemia?
• Which labs perform testing for Fanconi anemia?
• Where can I find reliable information about Fanconi anemia online?
• When will I die from Fanconi anemia?