It is very difficult to make general statements about symptoms of Ehlers-Danlos syndrome (EDS). EDS is a group of several, related disorders, but these disorders are different. Also, people with the same subtype of EDS and even people in the same family can have very different symptoms. All of the symptoms you read about occurring in EDS will not apply to individual people. Every person is unique and the way the disorder will appear and progress will be unique as well.
People with EDS are encouraged to talk to their physician and medical team about their diagnosis and their prognosis. A genetic counselor or metabolic geneticist can provide information on your specific genetic changes and how they related to your EDS diagnosis. A listing of medical geneticists can be found at the American College of Medical Geneticists website and genetic counselors can be found on the National Society of Genetic Counselors website.
