Where do I find other people with galactosemia?

Support groups can put you in contact with other people or families that have galactosemia. Support groups include Galactosemia Foundation, Galactosaemia Support Group (UK), the European Galactosemia Society, and the Australian Galactosaemia Support Network.

There are also online communities for rare disorders such as RareConnect, RareShare, or Inspire, which allow individuals and parents to share experiences and advice about dealing with rare disorders.

Other Questions About Galactosemia

• Will my child outgrow galactosemia?
• Why are there compliance issues with galactosemia?
• Who else in my family should I test for galactosemia?
• Where do I find other people with galactosemia?
• What states have newborn screening for galactosemia?