You can start finding other people with Niemann-Pick disease type C by contacting the support organizations for this condition:
Other Questions About Niemann-pick type c
- Who else in my family should I test for Niemann-Pick disease type C?
- Which Niemann-Pick disease type C is more common, type C1 or type C2?
- Where do I find other people with Niemann-Pick disease type C?
- When should a doctor suspect that a person has Niemann-Pick disease type C?
- What is the usual abbreviation for Niemann-Pick disease type C?
