Studies show that the rate of depression is double that of the general population during the preclinical (before symptoms happen) and symptomatic period, for those with Huntington’s (or Huntington) disease (HD). It is not known whether this is associated with the changes occurring in the brain due to HD, or if it is associated with knowledge of having HD, and the lack of control over what is happening to the body.
Additionally, suicide is a real risk for families with HD. There are two peaks when suicide and suicidal ideation are most likely — just prior to receiving a diagnosis of HD, and again when symptoms of HD have progressed to a point when independence is lost.
It is important for families, caregivers, and people with HD to be aware of the risks and be educated on how to recognize risk factors for suicide and suicidal ideation. Establishing a relationship with a mental health provider early on is a helpful. Additionally, medications are commonly offered to help with depression and suicidal ideation, if a doctor knows they are occurring.
Reaching out to an advocacy or support group can help families and people with HD feel less alone. In the U.S., the Huntington’s Disease Society of America (or HDSA, a ThinkGenetic Advocacy Partner) offers many ways to connect and access resources about living with HD on their website at http://hdsa.org/living-with-hd/.
Other Questions About Huntington’s disease
- Why is nutrition so important for people with Huntington’s disease?
- Why is depression and suicide higher in families with Huntington’s disease?
- Who else in my family should consider genetic testing for Huntington’s disease?
- Where do I find other people with Huntington’s disease?
- Where can Huntington’s disease caregivers learn more and get support?
