To find other people with achondroplasia, consider joining local support or activism-related groups for people with achondroplasia. Additionally, consider asking your doctor if he or she knows of any individuals or families with achondroplasia.
Support group websites can help connect people with achondroplasia to others with the same diagnosis. Some such support groups are listed here:
Other Questions About Achondroplasia
- Who else in my family should I test for achondroplasia?
- Where do I find other people with achondroplasia?
- What types of tests should be done for achondroplasia?
- What type of delivery is recommended for pregnant mothers with achondroplasia?
- What treatments are available for sleep apnea in patients with achondroplasia?