Where do I find other people with Andersen-Tawil Syndrome?

The Periodic Paralysis Association (www.periodicparalysis.org) has a discussion board that may be helpful in finding other people who experience the periods of muscle weakness (periodic paralysis) that are characteristic of Andersen-Tawil syndrome.

Also, Karen Carr Beihl runs a Facebook page and private Facebook group for those with Andersen tawil syndrome.

Andersen-Tawil syndrome is also listed on Patients Like Me.

Other Questions About Andersen-tawil syndrome

• Why might a child be tested for Andersen-Tawil Syndrome?
• Who else in my family should I test for Andersen-Tawil Syndrome?
• Where do I find other people with Andersen-Tawil Syndrome?
• What results from changes to the KCNJ2 gene?
• What is the usual abbreviation for Andersen-Tawil Syndrome?