The parents of a child with Andersen-Tawil Syndrome should have an evaluation by a cardiologist and/or neurologist. Parents should meet with a medical geneticist or genetic counselor to discuss genetic testing for Andersen-Tawil syndrome. About 50% (1 in 2) children will not have a parent with the condition. If parents do not have the condition, then the siblings of the child with Andersen-Tawil Syndrome have a low risk to have the condition.
A medical geneticist can be found by asking your doctor for a referral or looking on the American College of Medical Geneticists website. Genetic counselors can be found on the National Society of Genetic Counselors website.
