Taking care of someone with a long-term or chronic condition can be tiring and challenging and this is no different for parents or other caregivers of people with Tay-Sachs disease. If you are a caregiver in need of support, try to take time for yourself, set aside time for personal counseling, or look for other resources at the Caregiver Action Network. This organization works to improve the quality of life for people who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. Support groups can also help provide support and advice for caregivers. Support groups for Tay-Sachs disease include: National Tay-Sachs and Allied Diseases Association, Inc., the Canadian Society for Mucopolysaccharide and Related Diseases, and the Center for Jewish Genetics.
Empowering Those Living with Genetic Conditions and Their Providers. Learn More.
ThinkGenetic Foundation
Empowering Those Living with Genetic Conditions
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The ThinkGenetic Foundation is a Non-Profit 501(c)3 established in 2016 to improve the quality of life for those living with or at risk for a genetic condition through education, quality information, access to genetic counseling and genetic testing, and partnerships with the advocacy and industry community.
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