The Huntington’s Disease Society of America (HDSA) website lists support groups and resources for Huntington’s (or Huntington) disease (HD) across the U.S., and these can be found at http://hdsa.org/about-hdsa/locate-resources/. HDSA is a ThinkGenetic Partner.
Other advocacy and support groups exist across the world as well. Asking your genetic counselor or other health care provider can help in identifying local resources and supports groups. In the U.S., you can find a genetic counselor near you by visiting the Find a Genetic Counselor website (by the National Society of Genetic Counselors) at http://www.nsgc.org/findageneticcounselor.
Other Questions About Huntington’s disease
- Why is nutrition so important for people with Huntington’s disease?
- Why is depression and suicide higher in families with Huntington’s disease?
- Who else in my family should consider genetic testing for Huntington’s disease?
- Where do I find other people with Huntington’s disease?
- Where can Huntington’s disease caregivers learn more and get support?
