The median timeframe of survival for someone with adult-onset Huntington’s (or Huntington) disease (HD) is 15-18 years after symptoms begin. The average age of death for a person with HD is 54-55 years of age. Some individuals live longer, especially if symptoms do not begin until a later age. Juvenile HD, which is rarer than adult-onset HD, has a rapid disease progression once symptoms begin. Death typically occurs in people with JHD within 10 years of the start of symptoms. Although there is no cure for HD, research and treatments continue to offer hope.
Other Questions About Huntington’s disease
- Why is nutrition so important for people with Huntington’s disease?
- Why is depression and suicide higher in families with Huntington’s disease?
- Who else in my family should consider genetic testing for Huntington’s disease?
- Where do I find other people with Huntington’s disease?
- Where can Huntington’s disease caregivers learn more and get support?
