When do people present with symptoms of long QT syndrome?

Individuals with Long QT syndrome (LQTS) can start having symptoms at any time from infancy to adulthood. However, depending on the type of LQTS and the gene(s) involved, the risk for onset of cardiac events is often higher from preteen years to the 20s. Even in family members with the same gene change, they may have a range of symptoms from no issues to severe and frequent cardiac events. This means that genetic testing in someone before they have symptoms may not be able to predict when they will start having symptoms, how serious they will be, or how fast they might worsen. It will however, allow them to avoid medications, substances, and events that lengthen the QT interval (link to that list) and work closely with a heart doctor who is experienced with LQTS and able to advise, monitor, and treat the condition with the most up-to-date information so if and when symptoms occur they will be prepared and reduce the chance of sudden death.

Other Questions About Long QT syndrome

• Will my newborn be tested for long QT syndrome?
• Where is there a center of excellence in long QT syndrome?
• Where can I find clinical trials on long QT syndrome?
• When do people present with symptoms of long QT syndrome?
• What tests are required for a diagnosis of long QT syndrome?