Where can caregivers of people with Turner syndrome get support?

Taking care of someone with a long-term or chronic condition can be tiring and challenging and this is no different for parents or other caregivers of people with Turner syndrome. If you are a caregiver in need of support, try to take time for yourself, set aside time for personal counseling, or look for other resources at the Caregiver Action Network. This organization works to improve the quality of life for people who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. Support groups can also help provide support and advice for caregivers. Support groups for Turner syndrome include: the Turner Syndrome Society of the United States, Turner Syndrome Foundation, The Turner Syndrome Society of Canada, and the Turner Syndrome Support Society of the UK.

Other Questions About Turner syndrome

• Will my child outgrow Turner syndrome?
• Will girls with Turner syndrome develop a gonadoblastoma?
• Who else in my family should I test for Turner syndrome?
• Where do I find other people with Turner syndrome?
• Where can caregivers of people with Turner syndrome get support?