The Alpha-1 Foundation is committed to finding a cure for alpha-1 antitrypsin deficiency (AATD) and to improving the lives of people affected by the condition worldwide. The Alpha-1 Foundation provides numerous services and support organizations for people affected by alpha-1 and maintains a network of alpha-1 specialty centers. Visit www.alpha1.org.
AlphaNet is devoted to improving the lives of individuals with Alpha-1 through comprehensive disease management services, clinical research administration and consultative services. Visit www.alphanet.org. AlphaNet’s Big Fat Reference Guide (BFRG) is a comprehensive guide and self-management program available on the Internet for individuals living with Alpha-1. Visit www.alphanetbfrg.org.
The COPD Foundation provides patients and families with information on COPD, treatment resources, support programs and an advocacy center. Visit www.copdfoundation.org.
Other Questions About Alpha-1-antitrypsin deficiency
- Will I die from alpha-1 antitrypsin deficiency?
- Who should be tested for alpha-1 antitrypsin deficiency?
- Who else should be tested for alpha-1 antitrypsin deficiency?
- Where do I find a center of excellence for alpha-1 antitrypsin deficiency?
- Where can I find other people with alpha-1 antitrypsin deficiency?
