The medical cost of CADASIL can be significant. Some families lack the resources necessary to provide for a chronically or terminally ill family member. There are several organizations that provide financial assistance.
Support groups for CADASIL provide advice, guidance, and resources for handling the financial costs associated with a diagnosis of CADASIL. These support groups include CADASIL Together We Have Hope and cureCADASIL.
The Social Security Administration provides disability benefits for people who qualify. CADASIL is not listed in the publication called the Disability Evaluation Under Social Security, also called the "Blue Book." However, people with CADASIL may still qualify for assistance if they have certain symptoms that qualify. For example, "vascular insult to the brain."
The National Organization for Rare Disorders (NORD) has links to organizations that can provide financial assistance.
The National Human Genome Research Institute has extensive information on finding financial aid for medical treatment and services.
