The medical cost of Tay-Sachs disease can be significant. Some families lack the resources necessary to provide for a chronically or terminally ill child. There are several organizations that provide financial assistance.
The Social Security Administration has a Compassionate Allowances Initiative. This program speeds up the processing of disability claims for people with specific medical conditions that cause severe disability. The classic, infantile form of Tay-Sachs disease is eligible for assistance under this program.
The National Organization for Rare Disorders has links to organizations that can provide financial assistance.
The National Human Genome Research Institute has extensive information on finding financial aid for medical treatment and services.
