As of 2019, more than 80 specialists in the U.S. are listed as Clinical Resource Centers (CRC) for alpha-1 antitrypsin deficiency (AATD) with the Alpha-1 Foundation. You can find the CRC closest to you at www.alpha1.org. In the U.S., you can also call the Alpha-1 Foundation genetic counselor at 800-785-3177 if you have questions about alpha-1 or access to care.
Many people with AATD receive regular care with a lung specialist called a pulmonologist. If you have the ZZ genetic type of AATD, remember to discuss liver screening with your doctor. If you have symptoms of liver disease, or diagnosed liver disease, you may see a liver specialist at a medical center near you, or locate the closest CRC liver specialist on the Alpha-1 Foundation website at https://www.alpha1.org/Healthcare-Providers/Testing-and-Treatment/Finding-an-Alpha-1-Specialist.
Other Questions About Alpha-1-antitrypsin deficiency
- Will I die from alpha-1 antitrypsin deficiency?
- Who should be tested for alpha-1 antitrypsin deficiency?
- Who else should be tested for alpha-1 antitrypsin deficiency?
- Where do I find a center of excellence for alpha-1 antitrypsin deficiency?
- Where can I find other people with alpha-1 antitrypsin deficiency?
