You may first want to ask your healthcare team if they know of resources or support groups in your area. You can also join online support groups who can connect you with other families who have a family member with Cri-du-chat syndrome. Some groups are:
Other Questions About Cri-du-chat syndrome
- Why do infants with Cri-du-chat syndrome have a cat-like cry?
- Who else in my family should I test for Cri-du-chat syndrome?
- Where do I find other people with Cri-du-chat syndrome?
- What specialist doctors should I see with Cri-du-chat syndrome?
- What other tests or evaluations may be done to monitor the care of a child with Cri-du-chat syndrome?