There is an app called Hemoglobe in the iTunes App Store where people with factor XI deficiency list their location and contact information so you can find people near you with your disease. You can also join one of the Facebook support groups and meet people through there. Additionally, your local genetic counselors and hematologists may be able to identify local support groups.
Other Questions About Factor XI deficiency
- Will my lifespan be limited by factor XI deficiency?
- Why should I tell people at my child’s school about his factor XI deficiency?
- Why do people with factor XI deficiency bleed?
- Who else in my family should get testing for factor XI deficiency?
- Where do I find other people with factor XI deficiency?
