Where do I find other people with fragile X syndrome?

The National Fragile X Foundation supports local, independently run Community Support Networks in each state as well as digital support groups for parents, siblings, and self-advocates for persons and families affected by fragile X syndrome. Please visit their Community Support Network page for more information: https://fragilex.org/living-with-fragile-x/community-support/.

Other Questions About Fragile X syndrome

• Who else in my family should be tested for fragile X syndrome?
• Where do I find other people with fragile X syndrome?
• What support groups are there for fragile X syndrome?
• What specialist doctors should I see with fragile X syndrome?
• What makes fragile X syndrome worse?