One of the easiest ways to find other people with Huntington’s (or Huntington) disease (HD) is to connect with a support group for individuals and families affected by HD. In the U.S., the Huntington’s Disease Society of America website offers this information on their website at http://hdsa.org/about-hdsa/support-groups/. Online groups are also available.
May healthcare providers who specialize in HD have other patients/families who have agreed to be contacted by individuals who are reaching out after a new diagnosis or are in need of support.
Other Questions About Huntington’s disease
- Why is nutrition so important for people with Huntington’s disease?
- Why is depression and suicide higher in families with Huntington’s disease?
- Who else in my family should consider genetic testing for Huntington’s disease?
- Where do I find other people with Huntington’s disease?
- Where can Huntington’s disease caregivers learn more and get support?
