Where do I find other people with Prader-Willi syndrome?

Because Prader-Willi syndrome is rare, you may not know anyone else with the disease in your town. But you are not alone. You can connect with other families through online support groups. You may wish to start by looking at The Prader-Willi Syndrome Association USA’s website with listing of support groups by state.

Other Questions About Prader-Willi syndrome

• Who else in my family should I test for Prader-Willi syndrome?
• Where do I find other people with Prader-Willi syndrome?
• What is Prader-Willi Syndrome?
• What is it like to live with Prader-Willi syndrome?
• What is average age for Prader-Willi syndrome kids to walk and how many never walk?