Will my child outgrow tuberous sclerosis?

Tuberous sclerosis is a genetic condition and there is no cure. A person will never outgrow the disorder. Tuberous sclerosis can affect people very differently. Some people have significant symptoms in infancy and childhood, while others have very mild symptoms and go undiagnosed until adulthood. Tuberous sclerosis is a progressive disorder and specific symptoms may develop at different times during a person’s life. The tumors that people develop in tuberous sclerosis are not cancerous, meaning they don’t spread (metastasize) to other areas of the body. However, these tumors can slowly grow larger damaging the surrounding tissue and causing symptoms. The rate of growth of the tumors can different in one person when compared to another. According to the Tuberous Sclerosis Alliance, most people with the disorder will have a normal life expectancy.

Other Questions About Tuberous sclerosis

• Will my child outgrow tuberous sclerosis?
• Who else in my family should I test for tuberous sclerosis?
• Where do I find other people with tuberous sclerosis?
• Where can I get financial help for tuberous sclerosis?
• Where can caregivers of people with tuberous sclerosis get support?