How do I find a center of excellence in hereditary angioedema?

The best way to obtain the most accurate, current, clear, and comprehensive information is to be seen at a center or clinic that specializes in hereditary angioedema (HAE). There is a center in the United States that specializes in the treatment of patients with HAE: the Angioedema Center at UC San Diego. This center-of-excellence offers comprehensive care for patients with angioedema, state-of-the-art diagnostic tests and techniques, the latest available therapeutic modalities, a full range of patient support programs, and cutting-edge translational research in angioedema. The Angioedema Center, in partnership with the US Hereditary Angioedema Association, aspires to improve the lives of angioedema patients throughout the world.

Support groups may have information on doctors who are experienced in treating hereditary angioedema. These support groups include the U.S. Hereditary Angioedema Association, HAE Canada, and HAEi – International Patient Organization for C1 Inhibitor Deficiencies.

Other Questions About Hereditary Angioedema

• Will my child outgrow hereditary angioedema?
• Who else in my family should I test for hereditary angioedema?
• Where do I find other people with hereditary angioedema?
• Where can I get financial help for hereditary angioedema?
• When do symptoms start in hereditary angioedema?