Other people with Neurofibromatosis Type 1 (NF1) can be found through online support groups, including:
Children’s Tumor Foundation (http://www.ctf.org)
The Neuro Foundation (http://www.nfauk.org)
Neurofibromatosis Network (http://www.nfnetwork.org)
Neurofibromatosis Midwest (http://www.nfmidwest.org)
Texas Neurofibromatosis Foundation (http://texasnf.org)
Neurofibromatosis Mid-Atlantic (http://www.nfmidatlantic.org)
There may also be local support groups in your area. A genetic counselor may be able to assist you in identifying local resources for families with individuals with NF1. The National Society of Genetic Counselors has a searchable "Find a Genetic Counselor" directory which can be used to locate genetic counselors throughout the United States and Canada.
Other Questions About Neurofibromatosis, type 1
- Who else in my family should I test for Neurofibromatosis Type 1?
- Where do I find other people with Neurofibromatosis Type 1?
- What specialist doctors should I see with Neurofibromatosis Type 1?
- What lifestyle changes should be made for people with Neurofibromatosis Type 1?
- What is the likelihood that someone has Neurofibromatosis Type 1?
