In general, there are no significant lifestyle changes that are recommended for people with NF1. There are certain symptoms potentially associated with NF1 which, if present in an individual, may require lifestyle modifications for that individual (eg, tibial dysplasia or dysplastic scoliosis). However, in those cases, any recommended changes for the individual’s lifestyle would be based on the symptoms present, not because of the underlying diagnosis of NF1.
Radiation therapy may be associated with increased risk to develop a malignant peripheral nerve sheath tumor, so people with NF1 may want to avoid this therapy if possible.
Other Questions About Neurofibromatosis, type 1
- Who else in my family should I test for Neurofibromatosis Type 1?
- Where do I find other people with Neurofibromatosis Type 1?
- What specialist doctors should I see with Neurofibromatosis Type 1?
- What lifestyle changes should be made for people with Neurofibromatosis Type 1?
- What is the likelihood that someone has Neurofibromatosis Type 1?
