There have been guidelines published regarding the medical management and surveillance of individuals with NF1 by multiple professional organizations, including the American Academy of Pediatrics (2008), the National Society of Genetic Counselors (2007), and other expert groups. These guidelines often include recommendations for assessments following the diagnosis of NF1, and then ongoing evaluations broken down by the age of the individual with NF1.
Some recommended surveillance guidelines include:
Other Questions About Neurofibromatosis, type 1
- Who else in my family should I test for Neurofibromatosis Type 1?
- Where do I find other people with Neurofibromatosis Type 1?
- What specialist doctors should I see with Neurofibromatosis Type 1?
- What lifestyle changes should be made for people with Neurofibromatosis Type 1?
- What is the likelihood that someone has Neurofibromatosis Type 1?
