The ThinkGenetic Foundation aims to provide education, awareness, and funding to the genetic condition community. The rare and genetic condition community is just that – a community.
Below are organizations that are working for the benefit of patients and healthcare providers in our community. We encourage you to take a peek and learn more about an organization that might speak to you.
FMF (Familial Mediterranean Fever) and AID (autoinflammatory diseases) Global Association is a non-profit patient-led umbrella organization supporting 22 affiliates, partners and serving autoinflammatory patients worldwide. FMF & AID is located […]
The HCU Network America strives to inform and provide resources for patients and families, create connections, influence state and federal policy, and support the advancement of diagnosis and treatment for […]
KrabbeConnect’s mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state-of-the-art research by bridging the gap between […]
The Leukodystrophy Newborn Screening Action Network is dedicated to : We do not believe in wasting time and resources by starting from scratch with each new disorder. Instead, we want […]
MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes […]
Our mission is to empower families and healthcare professionals with knowledge in organic acidemia metabolic disorders. We support early intervention through expanded newborn screening, solicit contributions and distribute funding that […]
Want to become a member of the network? Click here to apply.
