ThinkGenetic Foundation

Educate and empower people and families living with genetic diseases

(978) 295-9730 | info@thinkgenetic.org

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The A-B-Cs of Genetics – February 20 Lunch in Lafayette Louisiana

Have a Complimentary Lunch and Learn the Basics of Genetics!

A Special Event for Nurse Practitioners and Other Interested Medical Professionals in Louisiana

Enjoy a delicious complimentary lunch at The Petroleum Club paired with an informative and interactive discussion.

Learn the basics of genetics in order to recognize patients at increased risk for a genetic condition. This includes working together to understand how to identify at-risk patients, order diagnostic testing, prepare and monitor disease progression, empower patient decision-making, identify at-risk family members, and begin targeted therapy as soon as possible, when appropriate. 

This event will focus on key signs, testing procedures, and treatment options in genetic conditions such as Fabry disease, Pompe disease, Charcot-Marie-Tooth, Usher syndrome, and Tay Sachs disease.  

When

Thursday, February 20, 2020
11:00 AM – 1:30 PM CST

Where

Petroleum Club of Lafayette
111 Heymann Boulevard
Lafayette, LA 70503

REGISTER HERE

AGENDA*

AGENDA

11:00 AM – Event Check-In and Pre-Survey

Please complete the Pre-Survey prior to the event by clicking here. (LINK GOES HERE)

11:15 AM – Lunch Served and Welcome Message

11:45 – The A-B-C’s of Genetics by Dawn Jacob Laney, MS, CGC

As a healthcare provider you have a very unique opportunity with each patient. Sometimes clues in patient medical history suggest an underlying genetic cause for health issues. In this presentation learn the basic of genetics, inheritance, creating a family history, and interpreting a family history.


12:15 – Local Patient Practice and Discussion

Putting that new knowledge to work, we will learn from a local patient advocate and chat about ways you can help drastically improve the care of patients and members of their families. Special discussion will include ways to engage with areas where access to care can directly effect long-term outcomes.

12:45 –  Closing Comments and Post-Test

SPEAKERS

DAWN LANEY, MS, CGC is a genetic counselor, assistant professor, clinical researcher, and director of the genetic clinical trials center in the Department of Human Genetics at Emory University in Atlanta, Georgia. She is a co-founder of ThinkGenetic, Inc., who strives to empower patients seeking possible genetic causes for their medical issues or looking for real-life answers to their questions about the impact of living with a genetic disease. Dawn has written many books for children and teens living with genetic conditions in addition to her dedication to direct patient care.

ROBIN RICHARDSON lives in Baton Rouge, and is the mother of three sons. She and one son are living with Fabry disease. Presently, she is on a patient advisory board, and promotes awareness through the Governor’s Proclamation for Fabry Disease.

HOST

ThinkGenetic Foundation is a non-profit 501(c)3 charity whose mission is to improve the quality of life for those living with or at risk for a genetic condition through education, quality information, access to genetic counseling and genetic testing, and partnerships with the advocacy community. Learn more at thinkgenetic.org.

This event is sponsored, in part, by and educational grant from Sanofi Genzyme.

NURSING CREDIT HOURS

This activity has been submitted to Louisiana State Nurses Association for approval to award contact hours. Louisiana State Nurses Association is accredited as an approver of nursing continuing professional development by the American Nurses Credentialing Center’s Commission on Accreditation. For more information regarding contact hours, please call the ThinkGenetic Foundation for more information.

In order to receive contact hours for this activity, you must attend this entire event and successfully complete a post-test with a passing score of 70%.

REGISTER HERE

Free Lunch and Learn for Louisiana Nurses and Allied Healthcare Professionals

Calling all Louisiana nurses and allied health professionals – You’re invited to a FREE Lunch and Learn on June 20th.

Closing the Genetics Gap:  A Discussion on Increasing Education and Access to Genetics Services in Medically Underserved Parishes of Louisiana

Learn about the clues in patient medical history that could suggest an underlying genetic cause for their health issues with a focus on conditions more common in Acadiana.

Panel Discussion include patients with genetic conditions found in Acadiana including:

  • Annie Arabie, patient advocate living with Usher syndrome
  • Cynthia Bordelon Durham, patient advocate living with Fabry disease
  • Dan Arabie, patient advocate living with Usher syndrome
  • Matthew Lafleur, Patient Ambassador at FARA
  • Robin Richardson, Patient Advocate living with Fabry disease

 Special speakers include:

  • Margaret Bearb, Retired, Hospital Admissions Coordinator
  • Dawn Laney, MS, CGC Genetic Counselor
  • Carol Ogg, BS Pharm

When

Thursday, June 20, 2019 from 11:00 AM to 1:00 PM CDT
Add to Calendar

Where

Petroleum Club of Lafayette
111 Heymann Boulevard
Lafayette, LA 70503  

Registration Required

http://bit.ly/GeneticsLafayette

This opportunity is sponsored, in part, by an educational grant from: Sanofi-Genzyme

ThinkGenetic Foundation Presents at FSIG Expert Fabry Conference

The ThinkGenetic Foundation is excited to participate at the The Fabry Support & Information Group 2019 FSIG Expert Fabry Conference in Orlando.

This conference is especially for the Fabry patient community.

As part of the lineup, the ThinkGenetic Foundation will present “What’s up Doc: How to Talk with your Healthcare Provider” – a program designed to help patients (and family members) living with a genetic condition or seeking a genetic diagnosis talk to their healthcare providers about their symptoms and questions.

Learn more about the even by clicking here.

ThinkGenetic Foundation presents at Fabulous Fabry Females Luncheon

The ThinkGenetic Foundation is excited to participate in the Annual Meeting of the Fabulous Fabry Females luncheon, hosted by The Emory Lysosomal Storage Disease Center. This annual event focuses on sharing stories, asking questions, and meeting others in the community.

Special presentation by Julia Alton, Executive Director at Canadian Fabry Association.

Sunday, April 22, 2018
Noon-2:00 PM
Canoe Restaurant
4199 Paces Ferry Rd SE,
Atlanta, GA 30339
(770) 432-2663

ThinkGenetic Foundation Presents “What’s up Doc” at Fabry Patient Empowerment Meeting

The ThinkGenetic Foundation is proud to present “What’s up Doc: How to Talk with your Healthcare Provider” at the Fabry Patient Empowerment Meeting in Atlanta, Georgia.

This in-person program was designed to help patients and family members living with a genetic condition or seeking a genetic diagnosis talk to their healthcare providers about their symptoms and questions.

At the conclusion of the program, the participants should feel more confident in talking to their healthcare provider to optimize their care and treatment as well as understanding resources available to help them better understand genetic testing.

ThinkGenetic Foundation Presents at Canadian Fabry Association Empowerment Meeting

Dawn Jacob Laney, MS, CGC, CCRC, of the ThinkGenetic Foundation is proud to present “What’s up Doc: How to Talk with your Healthcare Provider” at the Canadian Fabry Association Empowerment Meeting.

This presentation is designed to help patients (and family members) living with a genetic condition or seeking a genetic diagnosis talk to their healthcare providers about their symptoms and questions.

At the conclusion of the program, participants should feel more confident in talking to their healthcare provider to optimize their care and treatment as well as understanding resources available to help them better understand genetic testing.

Registration: Click here

Our Ongoing Commitment to Patient Programs

The ThinkGenetic Foundation’s relevance throughout the genetics community is growing and becoming more firmly established among patients, family members, and advocacy groups as we continue to provide the necessary educational tools to understand their conditions and appropriately manage their disease.

The ThinkGenetic Foundation team works closely with patients, family members, advocacy groups, and healthcare providers to develop high-quality; patient-geared programs and materials that help educate and encourage discussion among patients and their healthcare team while empowering patients to become better managers of their own health outcomes.  These programs are generously funded through individual donations and grants by industry, providers and pharmaceutical partners who share our commitment to quality patient care and consumer choice.

Each of our educational programs is subjected to critical review by our board of directors for accuracy and by our patient advocacy and support partners for relevance and ease of understanding and practical use. 

Every program is designed with the purposes of:

  • Understanding a full range of management and clinical treatment options for selecting appropriate therapies;
  • Identifying barriers to genetic testing and receiving quality monitoring/treatment; and
  • Reinforcing practical next steps to motivate change and achieve an overall improvement in health outcomes

The ThinkGenetic foundation engages in many multi-supported programs and activities that educate, advocate for, and empower patients to understand their options, access genetic testing, understand the impact of the genetic condition on them/their family members, take control of their illness, and make informed choices on the best course of monitoring and treatment for them.  The ThinkGenetic foundation firmly believes that an informed patient is a stronger patient.

The Association takes pride in its current and future programs, as all activities must:

  • Further its mission;
  • Meet the guidelines of ThinkGenetic’s initiatives (see chart below);
  • And most importantly, begin and end with patients and improved outcomes.

ThinkGenetic Foundation Patient Programs

 

978.295.9730
info@thinkgenetic.org