ThinkGenetic Foundation to Host Free Program Focusing on Education in the Medical Community About Clues That Help Identify Patients at Risk to Have Genetic Conditions
What
The ThinkGenetic Foundation is hosting a free lunch and learn program for nurses and allied healthcare professionals. This event, sponsored with an educational grant by Sanofi Genzyme with support from several local and national organizations, will provide expert information about genetic conditions common in Louisiana and the importance of early diagnosis. Discussion to include guidance for reducing time to diagnosis and directly hearing the powerful messages from five local patients living with these conditions in or near Lafayette, LA.
Why
Research has shown there are around 25 conditions and genetic predispositions to cancer that have an increased frequency in Louisiana. Genetic diseases often mimic more common medical issues; however, many have “red flags” that can provide clues as to which patients require a genetic evaluation. The application of technological innovations helping healthcare providers identify patients at increased risk of a genetic condition has resulted in very useful tools. Special focus will be on the importance of early identification of genetic conditions and the perspective of members of the Lafayette community living with some of the common genetic conditions.
When
Thursday, June 20th, 11:00 AM – 1:00 PM
- Registration opens at 11:00 AM with immediate lunch and presentations.
- 11:05 AM: Why Think About Genetic?
- 11:25 AM: TI in IT for G: Technological Innovations in Genetic Diagnosis to Help You
- 11:40 AM: The Importance of Genetic Diagnosis: A Local Perspective
- 12:00 AM: Patient Panel Discussion
Where
- Petroleum Club of Lafayette
- 111 Heymann Boulevard
- Lafayette, LA 70503
Who
- Dawn Jacob Laney, MS, CGC, CCRC – SPEAKER
- Co-Founder ThinkGenetic Foundation
- Assistant Professor/Genetic Counselor
- Director of the Emory Genetic Clinical Trial Center
- LSDC Program Leader
- Carol Ogg, BS PHARM – SPEAKER
- President
- The COCo Marketing Group
- Rare Genetic Disease Consultant
- Margaret Landry-Bearb – SPEAKER
- Retired, Hospital Admissions Coordinator
- Dave Jacob
- Co-Founder and Patient Advocate
- ThinkGenetic Foundation
- Cian Robinson
- Executive Director
- Innovation, Research, and Real Estate Investments
- Lafayette General Health System
- Annie Arabie – PANELIST
- Patient Advocate
- Cynthia Bordelon Durham – PANELIST
- Patient Advocate
- Dan Arabie – PANELIST
- Founder
- LA Helen Keller Deafblind Awareness
- Matthew LaFleur – PANELIST
- Patient Ambassador
- FARA
- Robin Richardson – PANELIST
- Patient Advocate
EVENT PARTNERS AND SUPPORTERS:
- Fabry Support & Information Group (FSIG) – fabry.org
- Friedreich’s Ataxia Research Alliance (FARA) – curefa.org
- Lafeyette General Health – lafayettegeneral.com
- National Fabry Disease Foundation (NFDF) – fabrydisease.org
- Sanofi Genzyme – sanofigenzyme.com
- Usher Syndrome Coalition – usher-synrome.org
- ThinkGenetic, Inc. – thinkgenetic.com
For more information about ThinkGenetic Foundation visit www.thinkgenetic.org
