A few support groups for Peutz-Jeghers syndrome can be found such as:
Hereditary Colon Cancer Foundation
Website: https://www.hcctakesguts.org/
Peutz-Jeghers Syndrome Online Support Group
Additional support may be found at the Genetic and Rare Disease Information Center and National Organization for Rare Diseases both have links to support groups for Peutz-Jeghers syndrome.
Other Questions About Peutz-Jeghers syndrome
- Who else in my family should be tested for Peutz-Jeghers syndrome?
- Where should I get treatment for Peutz-Jeghers syndrome?
- Where do I find other people with Peutz-Jeghers syndrome?
- When do I need to start screening examinations for Peutz-Jeghers syndrome?
- What types of tests are used in an initial exam for Peutz-Jeghers syndrome?
