There are several ways to connect with other people with Peutz-Jeghers syndrome, including online community forums such as Smart Patients. Your genetic counselor or medical genetics specialist can also help connect you to other families with Peutz-Jeghers syndrome.
Other Questions About Peutz-Jeghers syndrome
- Who else in my family should be tested for Peutz-Jeghers syndrome?
- Where should I get treatment for Peutz-Jeghers syndrome?
- Where do I find other people with Peutz-Jeghers syndrome?
- When do I need to start screening examinations for Peutz-Jeghers syndrome?
- What types of tests are used in an initial exam for Peutz-Jeghers syndrome?
