Rare diseases that affect multiple organ systems like hereditary angioedema (HAE), can benefit from a multidisciplinary approach. This approach involves healthcare professionals with specialized skills and expertise. The specialized professionals work together to make treatment recommendations and to provide quality care for individuals and families. Depending upon the specific symptoms, in an individual multidisciplinary team may require a specialist who can assess and treat problems of the immune system (immunologist); an ear, nose and throat specialist (otolaryngologist) who can assess and treat disorders of the ear, nose and throat; a specialist in digestive disorders (gastroenterologist) who can treat problems of the gastrointestinal system; a genetic counselor who can help people understand the disease and the implications for the person and other family members; a child behavior specialist; and a metabolic disease specialist.
Talk to your doctor about the best specialists in your area to follow an individual with hereditary angioedema.
