What is the life expectancy for someone with Neurofibromatosis Type II?

There is a wide range of symptoms and health problems for people with Neurofibromatosis Type II (NF2). Although the tumors are not cancerous, their location and number can lead to increased risk for serious health issues and decreased life expectancy. Survival is improving with earlier diagnosis and better treatment in specialty centers. Older research showed that people diagnosed before the year 1990 on average lived another 15 years. However, because of medical advances and the creation of centers specializing in caring for people with NF2, life expectancy can be into the 60’s. The earlier someone is diagnosed with NF2, the higher the likelihood of living longer if they are able to access quality care.

Other Questions About Neurofibromatosis, type II

• Why do mutations in the NF2 gene cause Neurofibromatosis Type II?
• Who else in my family should I test for NF2?
• Who else in my family should have testing for Neurofibromatosis Type II?
• Where do I find other people with NF2?
• What specialist doctors should I see with Neurofibromatosis Type II?