Where do I find other people with NF2?

The best resource available for patients to connect with others who have NF2 is the Children’s Tumor Foundation. The CTF has regional representatives who can help connect patients and families with resources in their area. They have a chapter in every state in the US, and to get more information you can go to their website.

Other Questions About Neurofibromatosis, type II

• Why do mutations in the NF2 gene cause Neurofibromatosis Type II?
• Who else in my family should I test for NF2?
• Who else in my family should have testing for Neurofibromatosis Type II?
• Where do I find other people with NF2?
• What specialist doctors should I see with Neurofibromatosis Type II?