Finding a genetic counselor and/or a medical geneticist near you would be an ideal way to make sure you have the information you need to make sure your Alkaptonuria is managed correctly. A medical geneticist can be found by asking your doctor for a referral or looking on the American College of Medical Geneticists website. Genetic counselors can be found on the National Society of Genetic Counselors website.
Make sure your primary care physician has the appropriate information on Alkaptonuria in order to ensure that you are receiving the proper medical management.
