What should I know about the diet for children with Barth syndrome?

Boys with Barth syndrome may have very low blood sugar (hypoglycemia), so may need to eat meals more often. Infants and young boys may also benefit from eating raw (uncooked) cornstarch before long periods of fasting (such as overnight). More details are available from the Barth Syndrome Foundation in a document called "Cornstarch" available at https://www.barthsyndrome.org/barthsyndrome/familyresources/factsheets.html. Discuss all of this with your doctor before making any diet changes for your child or yourself.

Other Questions About Barth syndrome

• Why does Barth syndrome cause heart problems?
• Who else in my family should have testing for Barth syndrome?
• What specialists should I see for Barth syndrome?
• What should parents and siblings of people with Barth syndrome know?
• What should I know about the diet for children with Barth syndrome?