The medical cost of hereditary angioedema (HAE) can be significant. Some families lack the resources necessary to provide for a chronically ill family member. There are several organizations that provide financial assistance.
Support groups for HAE provide advice, guidance, and resources for handling the financial costs associated with a diagnosis of HAE. These support groups include the U.S. Hereditary Angioedema Association, HAE Canada, and HAEi – International Patient Organization for C1 Inhibitor Deficiencies.
The National Organization for Rare Disorders (NORD) has links to organizations that can provide financial assistance.
The National Human Genome Research Institute has extensive information on finding financial aid for medical treatment and services.
